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Tell me about registries

What are Registries?

Registries are secure systems that collect information about the treatments people receive and how well they work over time. They are designed to make care safer, more transparent and more personalised.

They help keep you safe: By collecting information from thousands of patients, registries can spot problems more quickly—such as complications linked to a specific operation or device. This means doctors can investigate and act earlier to prevent harm.

You can be contacted quickly if there is a problem: Because the registry securely records which treatment or implant you’ve had, healthcare teams can contact you directly if there is ever a safety concern, recall, or important update about your treatment.

They improve future care (including yours): The information collected helps doctors understand which treatments work best and which carry more risks. This leads to improvements in care, so both you and future patients benefit from better, safer treatment options.

They support better decision‑making: Registries allow doctors to give you clearer, more honest information about what to expect. This can include likely success rates, risks and long‑term outcomes, so you can make informed choices about your treatment.

They make care more transparent and consistent: By comparing results across hospitals and clinicians, registries help ensure everyone receives a high standard of care, wherever they are treated.

In simple terms registries turn real patient experiences into evidence that helps doctors learn, improve treatments, and keep patients safer, both now and in the future.

Pelvic Floor Registries

There are two registries that are applicable to patients with pelvic floor disorders. The National Neuromodulation Registry (NNR) for patients receiving Sacral Nerve Stimulation for bladder and bowel control and The Pelvic Organ Prolapse & Stress Urinary Incontinence (POP-SUI) Registry for those under going surgery for pelvic organ prolapse or stress urinary incontinence.

Further information regarding these registries can be found here:

The National Neuromodulation Registry (NNR)

The Pelvic Organ Prolapse & Stress Urinary Incontinence Registry (POP-SUI)